Every place I go, I think of you

II’m sitting up in bed with knots in my stomach. My bags are packed and double checked. Extra outfits in my carry on and all idevices are charged and ready to go. But I still have that sick feeling in the pit of my stomach like I’m forgetting something.

I’m not a nervous traveller by any stretch. I’m not stranger to airports and long flights, nor is Darcy, but this feels so different. All I’ve wanted is for this vacation (I still hate that word) to be is an escape for me and Darcy to be able to start to put our lives back together. All I want is to be able to walk into a room, for just a little while, and not have people look at me and think “there’s the girl with the dead baby”. I want for us to have time for ourselves to rediscover what life is all about for us now.

But then there’s the pressure. That nagging voice in the back of my head. I’m starting to feel like people are expecting it to be a magic potion to fix everything. Maybe that’s an expectation that my mind has fabricated (as it tends to do), but it’s one I feel, none the less. I’m not going to come back and be “fixed”. This is who I am now. I am a childless mother. And for the rest of my life I will think of Everlee every single day and miss her, and grieve for her. I just need to learn how to live with that, and I hope this will be the beginning of this process.

The anger is starting to slowly seep in. Not in the way I expected it. In glancing through my Facebook feed tonight I was sorely reminded of how some people simply don’t appreciate all that has come to them so easily. A lot of people take for granted what I so desperately wanted and lost. Everlee was everything I ever wanted and never thought I would ever get to have, and I only got to keep her for an instant. Please, cherish every moment with your children while you can, don’t take for granted the gift you’ve been given. I’d gladly and without a hesitation give every day of this trip for just one second with my little girl again.

I know what I feel l Ike I’m forgetting. I’ve known for weeks in preparing for this trip. It breaks my heart that I’m leaving my little baby girl behind. Even if she isn’t still here, the mother in me, the mother that I am, feels like I am leaving my baby for the first time. The knot in my stomach is a mother’s anguish. A mother’s guilt. But I guess that will never go away.

Bon voyage for now. I don’t know if I’ll update this blog from my travels. Part of me wants to completely disconnect for awhile. The other part of me knows that this blog has become my release and my only true outlet to rawly articulate myself in the most honest way I know how. I guess, like everything in my life, I’ll just take it one day at a time.

The Loss of Potential

I so desperately want to write something tonight. I’ve been sitting here looking at a blank screen for what seems like hours listening to the wind howling outside and I can hear the faint sounds of the TV from the basement where Darcy is. But the screen has remained empty for the majority of that time. Much like me. Another stage of mourning I suppose, but I feel just so used up. So empty and worthless. Not in a pity-party kind of way, but in a deeply tired in my soul way. Like a used tin can; contents emptied, can tossed aside. Of no use anymore.

These past few days have been particularly hard for no real evident reason, aside from the obvious. I’ve found myself wanting more and more to crawl into bed and cry for hours on end. My nights are still plagued with sleeplessness. I haven’t gotten more than two hours sleep in a row since Everlee died. I rarely sleep more than 3 hours a night. It’s really doing a number on my body, and it gives my mind no time to relax. It’s hard, on top of everything else that is already so incredibly hard. 

Today we started looking at headstones. I kept a brave face (I’m getting much better at swallowing my tears) but it was honestly one of the hardest things I’ve done in this whole process that has become my life. This will most likely be the last thing I ever buy for Everlee. The last thing I can really do for her. It will be her marker in the world. It’s how people will know she was here and that she was loved. How do I pick something like that? How do I commemorate the death of the dreams – first steps, words, days of school, riding a bike, learning how to swim and fish? How do I not only adequately mark the loss of our daughter, but a grandchild, a niece (by blood and love), a childhood friend for my friend’s children? How do I mark the loss of all of her potential and not just 34 weeks?

I thought Darcy and I would pick out a headstone today, I really wanted to get it done before we escaped for awhile,  but when we got there I was just flooded with all of that reality. This isn’t unfinished business to be dealt with. It’s a memorial to everything she was and could have been. I can’t rush that.  Her headstone will be simple, but I want it to be perfect, just like her. It’s worth that time. 

And for the first time I feel angry and jealous. I should be picking out dresses and hair bows. Instead I’m picking out headstones. 

Can you see that my baby is dead?

In this new life I am living, I go out into the world everyday and do my “supposed to’s”. I’ve resolved to get out of bed every morning (well mostly every morning, some mornings I just can’t), get showered and dressed and face the day. I try to accomplish something every day, despite the anxiety and the crushing grief, I face the day. Sometimes I stop in my tracks because reality hits me like a ton of bricks. I’ll see a mother with her children, or a pregnant lady at the store. Sometimes I’ll just remember something that happened the night I was in labour but had completely forgotten. Like today, out of no where I remembered that I had thrown up twice overnight while I was in labour. I have no idea why I remembered that, but the reality of it slapped me across the cheek and I can still feel the sting.  But everywhere I go there is this background music in my head, every conversation I have I hear it, every person I am with, I wonder do they know? It never stops.

“Can you see that my baby is dead?”

I look like I just had a baby. I have that telltale pooch in my tummy (not to mention my massive chest). I’ve never been one to feel particularly comfortable in my body. Truth be told, I have hated my body my whole life. I have always suffered from somewhat low self esteem when it comes to my physical appearance. I’ve never felt beautiful, not even pretty. I’ve almost always been overweight, save for the year before I became pregnant when I had actually lost enough weight to finally feel comfortable in my own skin. And now my body, my physical appearance, serves as a constant reminder of losing my daughter. I lost her and I lost all of the hard work I put into trying to accept my body again. Now when I look in the mirror all I see is failure and self loathing. 

One of the things I am struggling with quite a bit now is the loss of who I was before Everlee died. I look at pictures of myself taken in the days and weeks before we lost her and I don’t even recognize that person. There’s one in particular that haunts me. A picture taken at Christmas, about six weeks before Everlee died. We were in front of the christmas tree and in the picture I am laughing. I am looking somewhere just beyond the camera lens. I look at this picture over and over. The woman I see there is content. I see her, smiling and confident, and feel an odd sense of detachment. I stare into my own eyes looking for clues- clues to what I’m not really sure; maybe some foreshadowing of the nightmare that will shortly begin, maybe some answer to how I will continue to survive. I envy her, but also pity her- she has no idea what’s coming.

The sound of silence.

Tonight was hard.  I’m more-than-ever acutely aware of how difficult I am to be around. And it hurts. Before Rhonda was always the centre of attention. After Rhonda stands on the periphery of a room and doesn’t get invited into the mix, let alone to the centre. 

I wish there was a guidebook for friends and family for how to deal with someone in  grief over the loss of a child. I make almost everyone uncomfortable, and awkward. More often than not, I evoke a deer-in-headlights reaction from people.  There are so few people I feel comfortable with anymore, and I know there are even fewer people comfortable around me. No one knows what to say, or do. They’re so afraid of hurting me they say nothing, unaware that it hurts me even worse than anything they can possibly say wrong. I’ve already lost my baby, anything you say won’t hurt worse than that. I just wish that there was a prescient for this – for all of our sakes. 

Afterthought: (Incidentally, I have discovered that someone HAS thought of this – this website has some suggestions.. http://www.glowinthewoods.com/how-to-help-a-friend/)

There’s an elephant in the room. But I’ve come to realize that the elephant is me. 

Everyone has gone back to their lives. I’m still here, frozen in time. It amazes me how I have not only become a stranger to myself, but to others too. Family and friends that I always considered so close to me have become strangers, they avoid me at all costs, physically and emotionally. Even when I’m in the same room. I’m not sure if they just don’t have the ability to interact with me without the fear of hurting me, or if  they fear I’m contagious – not unlike a leper. Whatever their reason I tend to feel more like the leper. I know their intentions aren’t malicious, but not having them here to support me hurts more than anything they could possibly say. Sometimes all I want is for someone to look me in the eye and ask me, genuinely, how I’m feeling (and not believe me when I answer with my usual, mournful “okay”). 

Then there’s those that I would never expect to even speak to me, or be understanding at all – relative strangers to the Before Rhonda –  that have come out of the woodwork to be some of my greatest supporters.

I guess watching people in grief does odd things to people. 

Darcy and I leave for a vacation in a little over a week. Miranda (my psychologist) says I grimace when I say the word “vacation”. She’s not wrong. I hate thinking of a vacation. I feel horribly guilty with the imagery of vacationing. This isn’t a vacation to me. I hate the thought of anyone, including myself, thinking of me care free on a beach sipping pina-colodas. This isn’t about sunning myself and getting my picture taken with Mickey Mouse. This is about anonymity, not having to constantly struggle to keep up with the social graces of being “that girl who lost her baby”. This is about taking some time to learn who I am now, away from the pressures of what “normal” has become, where I don’t have to look at that closed bedroom door all of the time. This isn’t about forgetting, because I’m not going to forget. I don’t WANT to forget. It’s about making happier memories and teaching myself that smiling isn’t a betrayal to Everlee’s memory, but it’s honouring her with my own living. It’s about learning how to smile again without having to concentrate on the mechanics of making it happen. 

It’s easy for me to type that. I just need to learn to live it now. This isn’t a vacation. It’s the beginning of a prescription for healing. I hope. 

And I hope being away from people I know will teach me how to be around them again, and maybe help me become easier to be around. And maybe I’ll get invited back into the mix, or maybe I’ll just find a new centre. 

 

My future life of living

There are so many moments when I am flooded with missing her. The shock hits me like a freight train that she’s really gone. I know that it sounds crazy, but it scares me to think of a time when I don’t get hit with how much I miss her, then she will seem farther so much farther away.

Mornings are hard, I miss her… but then again afternoons are rough, evenings difficult and night-time is downright painful. So my logical self (she doesn’t pop out too often) knows that life will start to grow around the pain and the missing, that it will be permanent piece in my new normal- my future life of living.

Do I ever hope life gets easier? Do I ever want to feel less pain? I know the answers to those questions, for me, are not the answers people would assume. I don’t really hope life gets easier. I don’t really want less pain. In a way, those are the ways I KNOW that I remember, the ways my heart knows she was so important and real. When I don’t feel pain or I start to move a little easier will that mean I have moved on? I don’t know, all these things my brain will get to, when it is ready.

Right now I’ll let the weight of the day rest on my shoulders and wait for the darkness of night to consume me and my thoughts for another sleepless night. This is a journey of me finding my new normal. I miss my old normal all of the time, my normal that included Everlee. I don’t know how this new normal will ever not be broken and in a way empty, but I choose to know that there is some path out of this darkness. I didn’t just lose my baby, I lost my whole world.

Due date

It just clicked over to midnight. Since July 15th I have been anticipating this day. 

For 8 months it was with joy and love and hope and a happiness I had never experienced before in my life.

For the five and a half weeks it has been with dread and bitterness and a hatred I never thought I was even capable of experiencing. 

March 24th is/was my due date. Now, it’s just another sour reminder that she isn’t here. She won’t be coming home. It’s another day that I’ll know there’s an empty crib behind that closed door in our house and that there’s a room full of things bought for, and given to her with love, things that she’ll never see or use. Outfits that I excitedly bought in Niagara Falls in October. A stroller that I have pushed miles around the basement and practiced opening and closing when no one was looking. Boxes of diapers I bought on sale so I wouldn’t have to worry about running to the store in those hectic first few months. And empty picture frames for those milestones she’ll never conquer. Constant reminders of my sweet Everlee and the future she’ll never have. I feel my entire being brimming with adoration and longing and wonder. Then my whole body aches by my broken heart. But I miss you, Everlee, with every breath I take.

Darcy and I decided we’d try to celebrate this day. Odd? Perhaps. We just both had been looking forward to it for a lifetime – her lifetime. We didn’t want to let it pass. Not without some recognition. Everlee deserves that. We deserve that. We’re going to go out to dinner. We’re going to talk about her. We’re going to remember her and celebrate all of that joy she brought to us for as long as we had her, and we’re going to be thankful for everything she gave us in her much much much too short life. 

And I’ll grieve. Like I have every day since she left us. And I’ll cry. Like I have every day since she left us. And my heart will ache for my lost baby. That painful sour lump in my throat will get bigger.  And I’ll survive the day. 

I’ve felt like the loneliest most broken woman on earth. Life is in a holding pattern. I try to remind myself of all the things I have to be thankful for. My husband, my best friend. My family. My friends. My good health.  The generosity of those who have donated to Ronald McDonald House in her name. My writing.  And yet, even among these many things that I list, there is a huge, empty, void. She is gone. She is still gone. This void is here in me. Every moment. Every day. I miss her. I miss my baby girl. 

Happily Ever After

 

When it comes to the stages of grief, research and leading psychologists suggest that I am supposed to be angry by now. I should hate the world for what happened to my beautiful little Everlee. I should be mad at God, Mad at the health care system, mad at fate for giving me such a beautiful little girl and stealing her away before she ever got a chance. But I’m not. I’ve never been an angry person. I can count on one hand how many times in my adult life I’ve been truly angry. Anger doesn’t seem to get anyone, anywhere. 

The only thing I can bare to be angry at, still, is myself. I’m mad that I was so naive. That I expected everything would be ok. That I took the fragility of life for granted. I’m mad that my body failed her.  And I find it hard to understand why those that grieve my little girl aren’t equally as mad at me. My body was supposed to protect her. It was supposed to be the safest place for her. But it failed. I failed. Rationally,  there was nothing I could have done. But I’m still haunted by the the thought that ultimately, all I could be was her coffin. 

I’ve never felt old, despite having been through a lot in my 27 years. I’ve always felt youthful, things have never wearied me as they seem to with others. I’ve never dreaded birthdays, and I’ve welcomed them and celebrated them with open arms. I was married at 24 and expecting my first child at 26, but always felt that I was just a baby myself, pretending to be a grownup in a great big world.  But as I look in the mirror now I’ve aged more in the past 5 weeks than I have in the past 15 years. The world weighs heavily on my shoulders. My eyes sag with sadness and exhaustion. Smiling is a chore – The corners of my mouth weigh a ton a piece. I’ve seen the thin veil, that delicate tiny line, that separates life and death.

I’ve often wondered what it takes for a person to survive something like this. What fabric makes up the kind of soul who can stare down the deepest and darkest tunnel of despair and turn up alive at the other end? Hardly unscathed, but alive nonetheless. People say I’m strong, but the truth is, there is a distinct difference between strength and the struggle for survival. And what I am doing is not strenght. It’s survival. It only hurts when I breathe. I think about how anything could change at any moment. We go through life planning and believing that certain things will be constant in our lives, until everything that we believed in comes crumbling down and the ground beneath us shatters. I have been thinking about this so much lately, in the endless sleepless hours of the night. The impermanence of life, of our bodies. and yet we live life planning for the future, believing we will all be here tomorrow. We find support from the earth and comfort in our homes, families and friends, but they could be gone at any moment, our homes could be lost and the earth could literally break beneath us. 

And it’s aged me. I feel myself holding back from others who seem to go on blissfully unaware of all of these life lessons I’ve had hurled at my head like bricks from a runaway train in the 5 weeks since Everlee has died. Don’t they know what could go wrong? Don’t they know that tomorrow isn’t promised to everyone? Don’t they know not everybody gets a happy ending? Not every story is a fairy tale. Not everyone lives happily ever after. 

But I’m not angry and I’m not strong. I just survive. 

Broken

 

I am so incredibly thankful for amazing friends. Friends that care enough about me to force me out of the house when all I want to do for the rest of my life is to curl into a ball in bed and cry. Twice yesterday I had extraordinary friends force me out of the house and push me out of my comfort zone to try and got me to be social. I know I need that, but I think sometimes I’m expecting too much of myself too soon. 

I’m hesitant to say that I had a good time last night. I did. But at the same time it was mentally exhausting. I felt like the majority of the time I was there I was hiding behind a mask. Acting every part to try and make myself seem normal, seem like I’m not completely broken. I tried to smile, and laugh and joke (and I did) but on the inside I was screaming at myself. 

It’s too soon to be out.

It’s too soon to act like everything is ok.

They know you’re acting, Rhonda.

Don’t you dare cry. 

How can you genuinely laugh like that when your baby is dead?

I stayed for a little over an hour and the guilt got to be too much. I came home. And I sat awake in bed until 6am. Agonizing over every minute, every smile, every laugh. How could I do that to her?

And it’s crazy, because I know most of the time I’m being irrational. I’m in a constant fight in my own head. But it always wins over, and I feel like I’m betraying my little girl. If she was alive right now I wouldn’t have been out last night. I would have been at home, snuggling her and thinking I was the luckiest person on earth. Instead I was standing in the middle of a kitchen surrounded by the people I love most thinking what a horrible person I was for being there. I should have been at home mourning her. The way I wanted to be, curled into a ball in my bed crying. 

I wouldn’t trade my friends for anything in the world, I love and adore them and everyday I am thankful that they care about me so much.I’m so happy that friends I haven’t been with in 3 years have come together to support me. I’m so happy we stood together and took a picture for the first time in 3 years last night.  

I think this time I just pushed myself too far too soon. If this is what being strong is, I don’t like it. It’s hard. So very utterly hard. I’m tired and I want a break. I’m afraid that soon the mask will crack and everyone will see how broken I really am. 

Image

 

(April, Amanda, Me and Dwan.) 

Where is God?

I’ve had this entry written for a few days. I haven’t done that with any other blog. Usually I post them immediately because I want them to be the raw and emotional account of this period in my life that they have been thus far. This is different. I considered not posting this, because I know it will upset some people. But this blog is about honesty emotion and hurt. This is how I am feeling at this juncture in my life. Many people have praised me for writing this blog, citing that it may help those who have gone through this who can’t find their voice. If that’s true, then I can only deduce that others have these same questioning, angry feelings about God that I do right now. So I’m posting this. If you want to debate the existence or love of God I ask that you first search deep inside yourself and ask if you were in my shoes would you really react any differently? 

This entry may upset some people. I’m prepared to deal with that. I am not, however, prepared to debate it.

I feel like I have been standing on the precipice of writing this entry for awhile now. Maybe it’s all of the fanfare surrounding the appointing of a new pope, or maybe it’s just my complete exasperation with people continually telling me that this hell I’ve been subjected to is part of Gods plan, but I really feel like it’s time I got this out.

I have always had a relationship with God. I was born and raised a catholic and the church has played various roles – sometime a supporting role, and sometimes a starring one – in my life. In my teen years, my search for God led me to many wonderful people who have helped shape who I have become. My faith has always played a part in who I am and has guided me in making many of life’s major decisions. I have never been showy about my spirituality, so this may come as a surprise to some. And although I have not been an active member of a church for many years, I have lived by the mantra that hands that  help are better than hands that pray. Not that I stopped praying, I just decided to devote myself to God in service in a more literal sense through volunteerism, than the figurative sense being spent in church for an hour each week.

But through all of this, I can’t help but wonder, when people tell me this was all a part of God’s plan,  what kind of monstrous, spiteful, vengeful God could ever rob my baby of a life she deserved? She will never wake me up to be fed at 3am. She will never squish buttercream icing between her chubby fingers on her first birthday. Her eyes will never light up at the sight of presents under the tree on christmas morning. She’ll never walk into a school for her first day of kindergarten. She will never have her nightmares kissed away by her mommy who loves her more than anything or anyone. If that was God’s plan – if he PLANNED this – I want no part in him. I want no part in a God conspired to take my baby away from me; a baby that I prayed and hoped and wished for every moment of my adult life. My Everlee.

There are a lot of things that are really hard for me to swallow when people say them, one is when people suggest “You could always adopt”. I think adoption is a wonderful, beautiful thing. But at this moment, it’s not a consideration for us. That is a last effort for us. And to me (again, what people say and what I hear are two very different things right now) I hear them telling me to give up and that I have no hope of ever having a biological child. The second  is that “God has a reason for this” or this is “Part of God’s plan”. I don’t often side with my husband when it comes to matters of the church, but in this case I agree with him – either I need another God, or God needs another plan.

I don’t foresee that I will search for God, or for a divine answer in all of this. As with all of my questions in this utter tragedy,  I don’t think that there are any answers. If there is a God out there, something I am doubting for the first time in my life, he’s going to have to prove himself to me.

What I do believe in, what I have more faith in now than ever before is the goodness of people. People have reached out from everywhere to support us. There have been people who have been there my entire life who have gotten closer, people who had left my life who have come back and shown me that love is never lost, and people who were always on the periphery in my life, who have stepped up when I have needed support the most. My faith is now, at least for the time being, in love, and in humanity.

Still Born

I hate when people call me brave. That’s probably a silly thing to say. I don’t take offense to it, I just don’t get it. Being brave would seem like a choice to me. I didn’t choose this path, so I didn’t choose to be brave. It’s funny how things sound coming out of others mouths and how they bounce around in your head to become something completely different. My ears hear “You’re so brave”. My mind hears “Congratulations on making it another day without throwing yourself off of a cliff”, as if I had some other viable alternative through surviving another day without her. I wake up and breathe in and out and move forward without her because I -have- to, not because it’s a brave choice I’ve made. 

I’ve come to the realization in the last few days that I am now part of a scary statistic. From what I have read, still birth affects 1 in every 200 pregnancies in North America (incidences are higher in third world countries). That’s a lot. More than I ever thought. I remember being warned about miscarriage early on, that losing the baby was a possibility before that seemingly magic twelve week mark but after that it never seemed to enter into the realm of possibility.  As the pregnancy progressed there were conversations about preeclampsia, downs syndrome, common birth defects… why did nobody ever warn me of the risks of still birth?  Nobody ever talks about the sad side of pregnancy. I remember saying a thousand times to people when they asked if we knew if we were having a boy or a girl: “I don’t care, as long as he or she is healthy”. Why did it never occur to me to say “I don’t care, as long as he or she is alive”? 

Before (capital B), I dreamed that each month I would take a picture of my baby with this stuffed Winnie the Pooh that Mom and Dad (Nanny and Poppy) had bought for their first grandchild when they went away on vacation last October. The one that I clutched to my chest at her funeral. It’s just big enough that if I propped my precious baby up along side of it every month and posted the pictures to facebook everyone would be able to see just how much our little baby had grown. This is one of the many “never” thoughts I have in the run of each and every single day. This will never be her one month birthday. Not to anyone but me,  at least. 

I haven’t exactly decided if it was morbid, though it very well may be, that when the clock struck midnight last night I silently muttered to myself “Happy one month birthday, Everlee”, The same way I used to talk to her when she was still alive, still in my stomach. I decided to post it to facebook anyway. To me, even though she was stillborn, Everlee was still born. February 13th will always be her BIRTHday to me, it will never symbolize the day she died, even if we had to say goodbye before we ever really got to say hello.

She would have been a month old today, I should be propping her up against that soft and squishy Winnie the Pooh for her pictures. 

It’s hard to believe, after all that has happened, that I was so scared of the labour process throughout my entire pregnancy. I was petrified of the pain and what it would do to my body. I was scared my body would never be the same. Who knew that it would be the easiest and least painful thing I would go through that day? Who could have realized it wasn’t labour that would change me forever? Certainly not me. Certainly not the people who loved Everlee the most. My baby was born healthy and beautiful, like I had always hoped. My baby just wasn’t born alive. There’s no bravery in that.