Purpose

I am, and always have been, fiercely independent. But I am also terrified of being alone. I have been so lucky to have the most amazing people surrounding me throughout this nightmare. Friends who try (as hard as they might)  to pick me up. And friends who, when they discovered I couldn’t be picked up, laid down beside me to listen for awhile. You have loved me at my darkest.  But despite that, I have felt so utterly alone in all of this. Not because they haven’t been incredibly supportive, but because there’s just no possible way they could understand.

Yesterday someone I know posted this blog post on my facebook wall:

http://facetsoflifeafterloss.blogspot.ca/2013/08/dear-non-bereaved-mama-with-love.html

It’s a letter to mothers with their children from a bereaved mother.  I have read literally hundreds of articles and blogs over the last 7 months, but none of them have resonated with me the way this one has.  It’s like she reached into my soul and pulled out the ords I couldn’t find.

I am so grateful that you don’t know how life is after the loss of your child.  I am so grateful that you don’t know the pain, the heartache or the desperation that takes occupancy within my heart.

Sometimes I wish you would just “understand” me, but then again I am so grateful that you don’t.

Sometimes all I want to do is sleep and sometimes I am afraid to.

Sometimes I am so sad.

Sometimes it is too hard to look in the mirror because there I see the pain in my eyes that I feel in my heart.

Sometimes I want to tell you how hard it is but I have resorted to just telling you I am “okay,” that’s what the world thinks I should be anyway.  Sometimes it is easier to just be “okay” in society until I get home to silence and then, then I wish I had a friend.

The loneliness struck again this week. I thought back to the day we came home from the hospital after leaving Everlee.  Led through the back halls of the hospital.  Empty handed.  Darcy didn’t have to walk into the hospital with an empty car seat, and carry her out to the car for the first time. I remember that feeling of extreme isolation.  That no one I knew – not a single person – understood what it felt like to deliver their full-term baby after they already knew she was gone. 

I don’t let people in often. I may seem like the kind of person who wears her heart on her sleeve, because I have been so brutally honest with my feelings and my grief here. But believe me when I say that there is so much, and so many thoughts and feelings that I don’t share here. Fear of being judged and  fear of losing control stop the words from escaping my finger tips. But this blog has allowed me to open up in ways I never have before. I don’t let people see me like this. If I tell you that you’re my friend that means a lot. If I tell you that I love you, know that it’s not a phrase or expression and know that I actually love you in the best and most honest ways that I can. And if I tell you that I trust you, know that you are among the elite in my life. But even then, opening up is so very hard for me.

But all of this pain has to have a purpose. If it doesn’t, I might as well wither away and die. I want to inspire people. I want someone to look at me and say “because of you, I didn’t give up”. That thought it what keeps me going. That thought it what keeps me writing. Everlee can’t have died in vain. If she has, then I have no reason to keep going. Her life, no matter how short, has a purpose. And it’s my job to fulfill that now

Because of you,  Everlee, I’ve had to grow thicker skin and be stronger than I ever knew I could possibly be, even though most days I barely have the strength to lift my head to look at the world. I’ve had to accept that terrible things happen. To good people, even.  And there’s nothing you can do to change it or fix it. I’ve had to learn how to accept things I never wanted to accept.  I’ve had to learn to make myself laugh again. To want to live life again. To find joy again.

 

Inch By Inch

To those of you who have been following my story, whether it be from right beside me, or only via my blog, you would know that around the same time that Everlee was born (within 6 weeks) both of my very best friends had babies as well. Claire was Born in January, and Danny was born in the wee hours of the first day or February. As a psychiatrist I spoke to once put it, it made a dreadfully tragic circumstance that much more painful for me to deal with. We were supposed to enter a new chapter of our lives together, like we did for high school, post-secondary and marriage. We’ve done everything together. And this was supposed to be the start of another generation of friends.

Don’t get me wrong for a second, I am over the moon happy for A and K. I love their children as if they were my own blood. They are wonderful babies. But knowing that my two best friends who I have turned to for everything in my entire life were now moving onto a stage of life that we were supposed to journey on together, without me, has been beyond heartbreaking. In spoken and unspoken ways we have been all in a delicate dance for the last number of months.

How much do I share of my sorrow without becoming too much?

And how much do they share of their joy without feeling like they’re hurting me?

Most times we don’t have to talk about this agonizing tango. It’s been hard. On all of us. Not just me.  But both of them live at a distance and going through this without them nearby has been worse than I could imagine.

So when the stars aligned a few weeks ago that we could all be together again for the first time in over 2 years, I swallowed my pain and booked a ticket to Halifax so that I could spend a week with my three best girlfriends – two of them with their same-aged children.

A lot of people were worried about me. Including myself. Mostly myself. How would I deal with being in a house with two babies the same age as Everlee should be? Would their crying cut me like thousand tiny knives? And would I be able to look at them without feeling the pain of every one of Everlee’s missed smiles?

Surprisingly, spending time with the kids was not the hardest part of the week for me. What was harder to swallow was the fact that my two best friends has grown into the most wonderful mothers. Watching them cooing over their beautiful babies, and kissing away every tear, and falling in love all over again over every giggle was what was most painful. Their shells were the same, but they had found a new love in the eyes of their kids that has awakened a beauty that I had never seen in them before. Their smiles were brighter, and they glowed with pride. And the jealousy I felt was almost more than I could bear sometimes. And I fought with myself, So overwhelmingly happy for them, to see them oozing with pure joy. And so sad for myself, who should be feeling all of that love for my Everlee, but instead feeling them exact opposite. Hot, burning painful sorrow of her absence.

I enjoyed my week. We shopped. We laughed, we drank beer and talked about the past and the future. I love my girl friends more than almost anything in the whole world, and my pain did not and will not ever overshadow our lifetime of friendship. Long before children were on the immediate radar, the three of us dreamed of a scenario where our kids grew up together, close in age and close in proximity. We imagined our babies crawling around together, our toddlers fighting over toys, our pre-schoolers trading sentences. It’s only natural, of course, for us to wish the sort of closeness between our kids as we share ourselves.  I grieve for that loss. But I am so thankful for their amazing supportive friendship. I am so incredibly lucky to have had these beautiful women in my life for the last 24 years. And nothing – NOTHING – will ever change that.

A, K, MD: I love you endlessly and thank you for being exactly the kind of friends I have needed every day of my life. And thank you for being there for me for that last week in Hali. You’re support and patience with me helped me more than you could ever understand, even if I never speak it aloud.

As I’ve changed -or maybe as my friends have changed- so have our relationships.  Sometimes we’ve stayed buoyed to each other and sometimes we’ve floated away, each pushed along by the tide of our own lives.  The friendships that have stuck and have followed me through my life despite all the changes, both theirs and mine, are the ones in which we’ve continued to find new places in our lives for each other.

I am not the same as I was seven months ago and neither are all of my friendships.  There is no more animosity for the ones who could not stay but there is so much gratitude for the ones that did.