Set Adrift

There’s something to be said about being cut off from the world completely for a week. This post will be scattered and disjointed, much like my brain. So please try to keep up.

The cruise was really great. A new adventure every day and something exciting always right around the corner. Waking up in a new place every morning. It was a week of much needed distraction, sunshine and adventure. I had fun. I even slept a little. But it wasn’t without its challenges. There were over 700 children on the ship. A lot of small babies. It made my heart ache. The first night in the dining room we got seated with a couple who were MAJOR religious folks, and when we told them about Everlee (they asked if we had kids) they told us they too had lost a baby they droned on and on about how it was God’s will and that we might not understand, but god does. Then the other couple we were with were 20 weeks pregnant. It was just not a good night. We moved tables the next day and got seated with two lovely couples around our age. It was a rough start.

There wasn’t a moment I didn’t think of my darling little girl. Every moment. Every experience. I just wanted her there so badly it ached. I vowed to myself that I would live life to the absolute fullest, because she could only live through me now. I want her to experience the world through me, so I have to try new things and go on adventures for her. It’s a thought that’s working for now, but I still can’t shake the guilt in being here. I still feel mad at myself for smiling. I posted a picture of myself on Facebook on our formal night on the ship:

20130422-193230.jpg

The comments about how nice I looked and how great it was to see me smile made me feel awful. I have no idea why. I guess I just feel like I’m betraying Everlee somehow. Like I shouldn’t be allowed to smile yet. I miss her so much. But it’s nice to have the anonymity here. The anxiety has eased a little around crowds knowing that not everyone sees my dead little girl when they look at me here, but now thinking of going back makes me ill.

In Jamaica I found a tanzanite necklace and earrings set that I absolutely loved. Darcy bought them for me for Mother’s Day, from Everlee. I cried so hard. I will cherish them forever.

Today began another ten days in Orlando. We went to Island of Adventure in Universal. It was fun. I went on my first big girl roller coaster and survived, and drank some butter beer at Hogwarts in the wizard inn world of Harry Potter.

I’m trying very hard to put one foot in front of the other each day bravely, but I still wake up every morning not wanting to get out of bed, and cry myself to sleep every night. I’m having moments of happiness during the day, but more than anything I’d give up this entire trip for just one half a second to hold Everlee again.

Greetings from the South

It’s amazing to me how each minute without Everlee has continued to drag on and feel like an eternity, but the days and months have flown by. Today, she would have been two months old. Instead of snuggling her late at night, I’m sitting on a sunny balcony in Florida relaxing after a morning of shopping (postpartum shopping is depressing). I’ve had a great week. Not happy, but peaceful. Rejuvenating. I’ve been able to relax and not worry about judging eyes, but there is never a second she’s not on my mind. We went to the Kennedy Space Centre yesterday and I just wish Darcy was able to share his excitement for the place with her. Everything I see and do I just wish more and more that she was here with me so that I could show her the world and experience things through her eyes.

I didn’t anticipate how hard it would be to see families with their little girls here. But I wasn’t thinking about that when we booked this trip. It’s bearable, but it’s just one more reminder.

We went down to the hot tub last night and met a number of different people and I was asked for the first time if we had kids. I was instantly sick to my stomach. I knew I’d get the question eventually. I was preparing myself for it. But the instant knot in my stomach. I don’t think I could ever describe it. I simply answered (choked) that we had one daughter, but she passed away. The woman said she was sorry for our loss and that was that. But it hung in the air over my head for a long time afterwards. This will be my answer to that question for a long time to come. I wonder if it will ever get any easier?

We leave on our cruise tomorrow morning, so I will be in radio silence for the next week. I’m hoping that the new experience will bring some happiness and some genuine smiles, big at the very least I hope I will continue to relax and maybe get a little more sleep if I’m lucky.

In the meantime, happy two month birthday to my beautiful baby girl. I live very moment for you now. Mommy loves you, Everlee.

20130413-135040.jpg

Every place I go, I think of you

II’m sitting up in bed with knots in my stomach. My bags are packed and double checked. Extra outfits in my carry on and all idevices are charged and ready to go. But I still have that sick feeling in the pit of my stomach like I’m forgetting something.

I’m not a nervous traveller by any stretch. I’m not stranger to airports and long flights, nor is Darcy, but this feels so different. All I’ve wanted is for this vacation (I still hate that word) to be is an escape for me and Darcy to be able to start to put our lives back together. All I want is to be able to walk into a room, for just a little while, and not have people look at me and think “there’s the girl with the dead baby”. I want for us to have time for ourselves to rediscover what life is all about for us now.

But then there’s the pressure. That nagging voice in the back of my head. I’m starting to feel like people are expecting it to be a magic potion to fix everything. Maybe that’s an expectation that my mind has fabricated (as it tends to do), but it’s one I feel, none the less. I’m not going to come back and be “fixed”. This is who I am now. I am a childless mother. And for the rest of my life I will think of Everlee every single day and miss her, and grieve for her. I just need to learn how to live with that, and I hope this will be the beginning of this process.

The anger is starting to slowly seep in. Not in the way I expected it. In glancing through my Facebook feed tonight I was sorely reminded of how some people simply don’t appreciate all that has come to them so easily. A lot of people take for granted what I so desperately wanted and lost. Everlee was everything I ever wanted and never thought I would ever get to have, and I only got to keep her for an instant. Please, cherish every moment with your children while you can, don’t take for granted the gift you’ve been given. I’d gladly and without a hesitation give every day of this trip for just one second with my little girl again.

I know what I feel l Ike I’m forgetting. I’ve known for weeks in preparing for this trip. It breaks my heart that I’m leaving my little baby girl behind. Even if she isn’t still here, the mother in me, the mother that I am, feels like I am leaving my baby for the first time. The knot in my stomach is a mother’s anguish. A mother’s guilt. But I guess that will never go away.

Bon voyage for now. I don’t know if I’ll update this blog from my travels. Part of me wants to completely disconnect for awhile. The other part of me knows that this blog has become my release and my only true outlet to rawly articulate myself in the most honest way I know how. I guess, like everything in my life, I’ll just take it one day at a time.

The Loss of Potential

I so desperately want to write something tonight. I’ve been sitting here looking at a blank screen for what seems like hours listening to the wind howling outside and I can hear the faint sounds of the TV from the basement where Darcy is. But the screen has remained empty for the majority of that time. Much like me. Another stage of mourning I suppose, but I feel just so used up. So empty and worthless. Not in a pity-party kind of way, but in a deeply tired in my soul way. Like a used tin can; contents emptied, can tossed aside. Of no use anymore.

These past few days have been particularly hard for no real evident reason, aside from the obvious. I’ve found myself wanting more and more to crawl into bed and cry for hours on end. My nights are still plagued with sleeplessness. I haven’t gotten more than two hours sleep in a row since Everlee died. I rarely sleep more than 3 hours a night. It’s really doing a number on my body, and it gives my mind no time to relax. It’s hard, on top of everything else that is already so incredibly hard. 

Today we started looking at headstones. I kept a brave face (I’m getting much better at swallowing my tears) but it was honestly one of the hardest things I’ve done in this whole process that has become my life. This will most likely be the last thing I ever buy for Everlee. The last thing I can really do for her. It will be her marker in the world. It’s how people will know she was here and that she was loved. How do I pick something like that? How do I commemorate the death of the dreams – first steps, words, days of school, riding a bike, learning how to swim and fish? How do I not only adequately mark the loss of our daughter, but a grandchild, a niece (by blood and love), a childhood friend for my friend’s children? How do I mark the loss of all of her potential and not just 34 weeks?

I thought Darcy and I would pick out a headstone today, I really wanted to get it done before we escaped for awhile,  but when we got there I was just flooded with all of that reality. This isn’t unfinished business to be dealt with. It’s a memorial to everything she was and could have been. I can’t rush that.  Her headstone will be simple, but I want it to be perfect, just like her. It’s worth that time. 

And for the first time I feel angry and jealous. I should be picking out dresses and hair bows. Instead I’m picking out headstones. 

Can you see that my baby is dead?

In this new life I am living, I go out into the world everyday and do my “supposed to’s”. I’ve resolved to get out of bed every morning (well mostly every morning, some mornings I just can’t), get showered and dressed and face the day. I try to accomplish something every day, despite the anxiety and the crushing grief, I face the day. Sometimes I stop in my tracks because reality hits me like a ton of bricks. I’ll see a mother with her children, or a pregnant lady at the store. Sometimes I’ll just remember something that happened the night I was in labour but had completely forgotten. Like today, out of no where I remembered that I had thrown up twice overnight while I was in labour. I have no idea why I remembered that, but the reality of it slapped me across the cheek and I can still feel the sting.  But everywhere I go there is this background music in my head, every conversation I have I hear it, every person I am with, I wonder do they know? It never stops.

“Can you see that my baby is dead?”

I look like I just had a baby. I have that telltale pooch in my tummy (not to mention my massive chest). I’ve never been one to feel particularly comfortable in my body. Truth be told, I have hated my body my whole life. I have always suffered from somewhat low self esteem when it comes to my physical appearance. I’ve never felt beautiful, not even pretty. I’ve almost always been overweight, save for the year before I became pregnant when I had actually lost enough weight to finally feel comfortable in my own skin. And now my body, my physical appearance, serves as a constant reminder of losing my daughter. I lost her and I lost all of the hard work I put into trying to accept my body again. Now when I look in the mirror all I see is failure and self loathing. 

One of the things I am struggling with quite a bit now is the loss of who I was before Everlee died. I look at pictures of myself taken in the days and weeks before we lost her and I don’t even recognize that person. There’s one in particular that haunts me. A picture taken at Christmas, about six weeks before Everlee died. We were in front of the christmas tree and in the picture I am laughing. I am looking somewhere just beyond the camera lens. I look at this picture over and over. The woman I see there is content. I see her, smiling and confident, and feel an odd sense of detachment. I stare into my own eyes looking for clues- clues to what I’m not really sure; maybe some foreshadowing of the nightmare that will shortly begin, maybe some answer to how I will continue to survive. I envy her, but also pity her- she has no idea what’s coming.

The sound of silence.

Tonight was hard.  I’m more-than-ever acutely aware of how difficult I am to be around. And it hurts. Before Rhonda was always the centre of attention. After Rhonda stands on the periphery of a room and doesn’t get invited into the mix, let alone to the centre. 

I wish there was a guidebook for friends and family for how to deal with someone in  grief over the loss of a child. I make almost everyone uncomfortable, and awkward. More often than not, I evoke a deer-in-headlights reaction from people.  There are so few people I feel comfortable with anymore, and I know there are even fewer people comfortable around me. No one knows what to say, or do. They’re so afraid of hurting me they say nothing, unaware that it hurts me even worse than anything they can possibly say wrong. I’ve already lost my baby, anything you say won’t hurt worse than that. I just wish that there was a prescient for this – for all of our sakes. 

Afterthought: (Incidentally, I have discovered that someone HAS thought of this – this website has some suggestions.. http://www.glowinthewoods.com/how-to-help-a-friend/)

There’s an elephant in the room. But I’ve come to realize that the elephant is me. 

Everyone has gone back to their lives. I’m still here, frozen in time. It amazes me how I have not only become a stranger to myself, but to others too. Family and friends that I always considered so close to me have become strangers, they avoid me at all costs, physically and emotionally. Even when I’m in the same room. I’m not sure if they just don’t have the ability to interact with me without the fear of hurting me, or if  they fear I’m contagious – not unlike a leper. Whatever their reason I tend to feel more like the leper. I know their intentions aren’t malicious, but not having them here to support me hurts more than anything they could possibly say. Sometimes all I want is for someone to look me in the eye and ask me, genuinely, how I’m feeling (and not believe me when I answer with my usual, mournful “okay”). 

Then there’s those that I would never expect to even speak to me, or be understanding at all – relative strangers to the Before Rhonda –  that have come out of the woodwork to be some of my greatest supporters.

I guess watching people in grief does odd things to people. 

Darcy and I leave for a vacation in a little over a week. Miranda (my psychologist) says I grimace when I say the word “vacation”. She’s not wrong. I hate thinking of a vacation. I feel horribly guilty with the imagery of vacationing. This isn’t a vacation to me. I hate the thought of anyone, including myself, thinking of me care free on a beach sipping pina-colodas. This isn’t about sunning myself and getting my picture taken with Mickey Mouse. This is about anonymity, not having to constantly struggle to keep up with the social graces of being “that girl who lost her baby”. This is about taking some time to learn who I am now, away from the pressures of what “normal” has become, where I don’t have to look at that closed bedroom door all of the time. This isn’t about forgetting, because I’m not going to forget. I don’t WANT to forget. It’s about making happier memories and teaching myself that smiling isn’t a betrayal to Everlee’s memory, but it’s honouring her with my own living. It’s about learning how to smile again without having to concentrate on the mechanics of making it happen. 

It’s easy for me to type that. I just need to learn to live it now. This isn’t a vacation. It’s the beginning of a prescription for healing. I hope. 

And I hope being away from people I know will teach me how to be around them again, and maybe help me become easier to be around. And maybe I’ll get invited back into the mix, or maybe I’ll just find a new centre. 

 

My future life of living

There are so many moments when I am flooded with missing her. The shock hits me like a freight train that she’s really gone. I know that it sounds crazy, but it scares me to think of a time when I don’t get hit with how much I miss her, then she will seem farther so much farther away.

Mornings are hard, I miss her… but then again afternoons are rough, evenings difficult and night-time is downright painful. So my logical self (she doesn’t pop out too often) knows that life will start to grow around the pain and the missing, that it will be permanent piece in my new normal- my future life of living.

Do I ever hope life gets easier? Do I ever want to feel less pain? I know the answers to those questions, for me, are not the answers people would assume. I don’t really hope life gets easier. I don’t really want less pain. In a way, those are the ways I KNOW that I remember, the ways my heart knows she was so important and real. When I don’t feel pain or I start to move a little easier will that mean I have moved on? I don’t know, all these things my brain will get to, when it is ready.

Right now I’ll let the weight of the day rest on my shoulders and wait for the darkness of night to consume me and my thoughts for another sleepless night. This is a journey of me finding my new normal. I miss my old normal all of the time, my normal that included Everlee. I don’t know how this new normal will ever not be broken and in a way empty, but I choose to know that there is some path out of this darkness. I didn’t just lose my baby, I lost my whole world.

Due date

It just clicked over to midnight. Since July 15th I have been anticipating this day. 

For 8 months it was with joy and love and hope and a happiness I had never experienced before in my life.

For the five and a half weeks it has been with dread and bitterness and a hatred I never thought I was even capable of experiencing. 

March 24th is/was my due date. Now, it’s just another sour reminder that she isn’t here. She won’t be coming home. It’s another day that I’ll know there’s an empty crib behind that closed door in our house and that there’s a room full of things bought for, and given to her with love, things that she’ll never see or use. Outfits that I excitedly bought in Niagara Falls in October. A stroller that I have pushed miles around the basement and practiced opening and closing when no one was looking. Boxes of diapers I bought on sale so I wouldn’t have to worry about running to the store in those hectic first few months. And empty picture frames for those milestones she’ll never conquer. Constant reminders of my sweet Everlee and the future she’ll never have. I feel my entire being brimming with adoration and longing and wonder. Then my whole body aches by my broken heart. But I miss you, Everlee, with every breath I take.

Darcy and I decided we’d try to celebrate this day. Odd? Perhaps. We just both had been looking forward to it for a lifetime – her lifetime. We didn’t want to let it pass. Not without some recognition. Everlee deserves that. We deserve that. We’re going to go out to dinner. We’re going to talk about her. We’re going to remember her and celebrate all of that joy she brought to us for as long as we had her, and we’re going to be thankful for everything she gave us in her much much much too short life. 

And I’ll grieve. Like I have every day since she left us. And I’ll cry. Like I have every day since she left us. And my heart will ache for my lost baby. That painful sour lump in my throat will get bigger.  And I’ll survive the day. 

I’ve felt like the loneliest most broken woman on earth. Life is in a holding pattern. I try to remind myself of all the things I have to be thankful for. My husband, my best friend. My family. My friends. My good health.  The generosity of those who have donated to Ronald McDonald House in her name. My writing.  And yet, even among these many things that I list, there is a huge, empty, void. She is gone. She is still gone. This void is here in me. Every moment. Every day. I miss her. I miss my baby girl. 

Happily Ever After

 

When it comes to the stages of grief, research and leading psychologists suggest that I am supposed to be angry by now. I should hate the world for what happened to my beautiful little Everlee. I should be mad at God, Mad at the health care system, mad at fate for giving me such a beautiful little girl and stealing her away before she ever got a chance. But I’m not. I’ve never been an angry person. I can count on one hand how many times in my adult life I’ve been truly angry. Anger doesn’t seem to get anyone, anywhere. 

The only thing I can bare to be angry at, still, is myself. I’m mad that I was so naive. That I expected everything would be ok. That I took the fragility of life for granted. I’m mad that my body failed her.  And I find it hard to understand why those that grieve my little girl aren’t equally as mad at me. My body was supposed to protect her. It was supposed to be the safest place for her. But it failed. I failed. Rationally,  there was nothing I could have done. But I’m still haunted by the the thought that ultimately, all I could be was her coffin. 

I’ve never felt old, despite having been through a lot in my 27 years. I’ve always felt youthful, things have never wearied me as they seem to with others. I’ve never dreaded birthdays, and I’ve welcomed them and celebrated them with open arms. I was married at 24 and expecting my first child at 26, but always felt that I was just a baby myself, pretending to be a grownup in a great big world.  But as I look in the mirror now I’ve aged more in the past 5 weeks than I have in the past 15 years. The world weighs heavily on my shoulders. My eyes sag with sadness and exhaustion. Smiling is a chore – The corners of my mouth weigh a ton a piece. I’ve seen the thin veil, that delicate tiny line, that separates life and death.

I’ve often wondered what it takes for a person to survive something like this. What fabric makes up the kind of soul who can stare down the deepest and darkest tunnel of despair and turn up alive at the other end? Hardly unscathed, but alive nonetheless. People say I’m strong, but the truth is, there is a distinct difference between strength and the struggle for survival. And what I am doing is not strenght. It’s survival. It only hurts when I breathe. I think about how anything could change at any moment. We go through life planning and believing that certain things will be constant in our lives, until everything that we believed in comes crumbling down and the ground beneath us shatters. I have been thinking about this so much lately, in the endless sleepless hours of the night. The impermanence of life, of our bodies. and yet we live life planning for the future, believing we will all be here tomorrow. We find support from the earth and comfort in our homes, families and friends, but they could be gone at any moment, our homes could be lost and the earth could literally break beneath us. 

And it’s aged me. I feel myself holding back from others who seem to go on blissfully unaware of all of these life lessons I’ve had hurled at my head like bricks from a runaway train in the 5 weeks since Everlee has died. Don’t they know what could go wrong? Don’t they know that tomorrow isn’t promised to everyone? Don’t they know not everybody gets a happy ending? Not every story is a fairy tale. Not everyone lives happily ever after. 

But I’m not angry and I’m not strong. I just survive. 

In my dreams

“I think we dream so we don’t have to be apart for so long. If we’re in each other’s dreams, we can be together all the time.”
― A.A. Milne, Winnie-the-Pooh

Losing a child puts you in a place where the irrational can be completely and plausibly rational. It puts you in a place where you’re surrounded by all these crazy thoughts, and you know they’re crazy, but you can’t help listening to them and wondering if maybe they have a point, if maybe they are right after all. It puts you in a place where confusion is a normal, day-to-day thing. And then sometimes you come out of this crazy place and think, what just happened to me? Did I really think those things, feel those things? Was that me? How could I even think that?

And then you bury those thoughts and try to ignore them and go about your business, but they keep coming back to you at odd hours, and they hound you until you feel you really might be going crazy. And you’re not sure who you can talk to about it because what will they think? And then you just sit down one day and write about it and stop caring what people think, because it’s part of you and part of this life – this new normal you have to come to accept.

And it makes you feel so alone. Surrounded by people buy so horribly, awfully, utterly alone. My personality has always been to help other people and I feel like I’ve been spending so much time navigating other people through how to talk to me, and trying to make them feel comfortable around me that I so seldom spend time trying to navigate this dark and lonely place for myself. Perhaps that’s why I’m awake at night, because its really this only time I have to myself.

Or maybe it’s the dreams. I only have one. Reliving that night. The worst night in my life. And if my body knows when it sleeps that’s where it’s going, then why on earth would it ever let me sleep again? And worst of all, I usually wake up thinking I’m hearing her crying for me. As if she was here. But she never is. And I never get to hold her again in my dreams. Her cries always wake me up. If only I could sleep long enough that I’d get to hold her again.

Once you cross that threshold of grief, it changes you forever. You can’t have any of it back. You can’t unlearn the harsh lessons of grief. You struggle to find a “bright side.” It’s not like losing your first love or not getting that job you always dreamed of. You can’t just tell yourself, “If I try hard enough, I can do it. I can get what I want. I can succeed.” That doesn’t work after losing a baby. Because it wasn’t a matter of trying hard enough or believing in yourself. It was never in your power. You can’t control life and death. You can’t even try. She’s never ever ever ever ever coming home.

It’s still so incredibly hard for me to believe that she’s gone, but everyday I have the physical reminders on my own body that she was here. And no matter how brief and limited her life was, what’s unmistakable is the profound effect she has had on me. Everlee has changed everything I ever was and everything I will be. Now I just need to get to know myself and who I’m going to be all over again. Without Everlee.

When you lose a baby, you lose everything. You lose all the hopes and dreams you held over those ten months, you lose confidence, hope, courage, strength. Your sense of control. It’s all gone. All you have left to you is grief. It’s the only thing that’s real; everything else is just an illusion.