Tag Archives: grief

It only hurts when I breathe

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I think that I am starting to accept that I will be sad forever.  It is my destiny to grieve.  I mean shouldn’t I?  I have a child who has died.  Should I not be sad until the day that I die?  And it is just starting to dawn on me,  I should be sad.  I should be sad every moment of every day.  How peculiar would it be if I wasn’t sad for my Everlee?  How cold and heartless would I be?  Instead of worrying that I’m still sad, I should worry that some day I might not be sad…as much as I desperately want the sadness to go away, the sadness means that she was real, and that she mattered. 

I know that at some point I have to allow myself to be happy, or at least that’s what my psychologist tells me. But I’m not there yet, and I’m not sure I ever will be. I have cried every day and I don’t know if the tears will ever stop. 

So often I go around feeling like I am alone in my misery, with Darcy. I don’t know many people (and I know nobody my own age) who has gone through this kind of tragedy. I don’t often get to see people on the other side of this Everest of pain. It seems sometimes that no one remembers that I was pregnant, and that there was a living being here on this earth that looked just like me and Darcy.

People forget that every day, every minute, I pine for that tiny soul, my sweet Everlee.

People forget that shoving their big bellies in my face, or their newborns reminds me of how broken and lost I really am and what I’ve lost, and what I may never have again.

Its human nature to forget, maybe that’s a good thing. I don’t know.

Out of sight, out of mind, I guess.

I can’t begrudge them (even if secretly, occasionally, I want to poke them in their perfect world).  

And just when I thought that every last soul on this earth (except Darcy) had forgotten that I had a precious baby once too, someone comes along with a nudge to tell me they remember.

Thank you Cathy, for giving me what many others could not.

My Interview with CBC Radio

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My Interview with CBC Radio

Today CBC Radio NL  aired the interview I had done on Friday about the issuing of birth certificates to children who are stillborn. The link provides audio for the that interview. A huge thank you to my twitter friend @donnydooley for grabbing the audio for me. 

Thank You. Thank you. Thank you.

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What a whirlwind.

I had no idea last night when I wrote that letter and posted it on this blog that so many people would share my plight. In the 15 hours since I posted that blog it has been viewed almost 4000 times. It has been shared on Facebook 226 times, and retweeted on twitter 45 times as well.

Thank you. When I wrote that letter I wasn’t sure anyone else would care. I know there are a lot of people that care about Everlee and care about me and my family, but I had no idea that so many people would care that my little girl didn’t have the piece of paper to recognize her little life that she deserves. Thank you for sharing my blog, but most of all, thank you for caring about her.

I sent that letter to the Minister at 7pm last night, and by 9:18am this morning I had a response from him personally. It read:

Rhonda

First of All please accept my deepest condolences. As a father I cannot even imagine the pain you have to live with forever. I cannot make a promise of a change however I will Work to make a change.

Nick

And honestly, I couldn’t ask for anymore from him. I know how bureaucracy works, and I know that change doesn’t happen over night. So knowing that this was on his radar was more than enough for me right now.  It is so reassuring to know that we have a government that is so committed to listening to the things that matter to its people.

Shortly after I received that email I got a message from CBC On The Go (a drive time talk radio program). My blog had reached their desk and they wanted to talk to me about what I had written and the response I had gotten. As much as it hurts, and as emotional and raw as this is for me, I could not turn down an opportunity to talk about my little girl to anyone willing to listen. I did the interview and it is supposed to be airing on CBC NL at around 5pm this evening. (more on this in a second)

Not 5 minutes after I hung up the phone with Maggie Gillis, I got a call from the head of vital statistics, the department responsible for birth and death certificates and the ones who would have to write the letter I need for Everlee. They had received my email from the Minister’s office this morning and were contacting me with some  good news.

  1. They have filled out all of the forms I need and are couriering the letter that I need to my door this afternoon. They were extraordinarily apologetic for everything I have had to go though, and the subsequent hoops that has caused me to have to jump through.
  2. They are directly dealing with the Department of Finance to ensure that my application for the parental child benefit goes through without having to cause me further grief. I won’t have to complete any more paper work, or go into their offices to go through the whole pain staking story all over again.
  3. Most importantly, as of this morning they have started reaching out to other jurisdictions to see what is done across Canada in recognizing stillborn babies in an official way and they are moving toward implementing a stillbirth certificate in Newfoundland and Labrador in the coming months.

All because of Everlee.

CBC called back shortly after to clarify some things in the interview, so I happily updated them with the information from Vital Statistics and the good news that they are moving towards a resolution for families like mine. Although the interviewer was happy to hear that, because of the change in the story they were unsure if they would run the interview now. Which is a shame. It was a horrible thing, that has had a positive outcome. I think hearing a story like that would give hope to families like mine, so I hope to hear them run the story this evening. If they do run it I will be updating and posting the audio here on the blog.

In the meantime, Thank you to Minister Nick McGrath for moving so quickly to do the right thing. But most of all, Thank you to all of you for following my daughter’s story and sharing in our journey. My life for the last four months has been agony. I struggle to get out of bed every single day, and my heart aches every single moment of every single day. There hasn’t been a day pass where I haven’t cried. And there hasn’t been a day where I haven’t wished I could take her place. But knowing that so many people out there care about my little girl, and care about me, is what keeps me going.

And with my little girl in my  heart, we’re going to change this. She will be recognized.

“You can’t stay in your corner of the Forest waiting for others to come to you. You have to go to them sometimes.” – Winnie the Pooh

Still Loved.

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It seems every time I open my facebook lately I’m faced with pictures of pregnancy and newborns. I’ve gotten beyond trying to block them from my newsfeed. There’s too many. They hurt. If someone had asked me last summer how I would cope if my baby died I would have said “I wouldn’t”.

I’m not unhappy for anyone else. 

I’m just jealous that it’s not me. 

I love my pictures of Everlee. I love looking at her little lips, and her cabbage patch nose. I love looking at her little fingers. Her big eyes. And it hurts me that I can’t put those on facebook. It hurts that I don’t have them hung on my wall. I won’t be able to put them on my desk at work. It hurts that I have to have her footprints as my profile picture, and not her sweet little face. I’m not ashamed of her. I would show her to the whole world if I could.

But some people can’t handle it. Sometimes just telling people about her leaves me feeling like I’ve sucker punched them. Dead babies make people sad and uncomfortable. Stillbirth is still such a taboo. I accept that, and I’m ok with it. It’s just one more of those “mommy” experiences I don’t get to have with her. 

I’ve not just lost a baby: I’ve lost a toddler, a school girl, a teenager and an adult daughter. A whole potential life has gone. The only tangible reminders I have left are pictures, as well as her footprints and hospital bracelet. I don’t even have a birth certificate.  These are – and always will be – my most treasured possessions.

If someone had asked me last summer how I would cope if my baby died I would have been wrong. Even now I can’t believe I’m still standing after giving birth to death. 

One Step Forward

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I had a really nice time tonight with a friend. Quiet and lovely and they knew exactly what I needed to make me genuinely smile for the first time in a long time.  I left feeling like maybe I could start having more moments like that and that maybe I might be ok sometime in the future. 

On my way home I decided to stop for some subway as a treat for my supper. As I stood in line the woman behind me asked me very politely if I knew how many calories were in my sub because it looked really good (it was a veggie sub on flatbread). She seemed nice, so we started talking about weight loss, and food, and dieting.

A few minutes in, she told me that she just had a baby and she was trying to lose the baby weight and that her baby is five months old.

 I told her that I was doing the same. 

 Then she asked me how old my baby was. I swallowed hard. I couldn’t lie. I swore I would never ever ever lie about Everlee. I said she would be 4 months old. But she passed away. 

The poor woman felt awful. For a few seconds she couldn’t speak properly. She stuttered, and stammered out an “I’m sorry. I shouldn’t ask so many questions”. So I, naturally, started to console her and told her it was ok, she would have no idea. After a few more seconds she finally said “My friend who was pregnant the same time as me. She went in the morning of her C-section at 9 months and they discovered her baby was stillborn. Then she had to deliver the baby.”

“Almost the same thing happened to me.” 

She felt awful. She tried to apologize. She put her hand on my arm and said “God has a reason for everything” but I just couldn’t take it any more. I had to leave. I just looked at her and said “It’s ok”. and I went to my car and burst into tears. 

To anyone reading that it might seem like a simple exchange. To me it was excruciating. Every single word was like a knife in my heart. I hate that the only story I have to tell people about my baby is that she died. I hate that talking about her makes other people so uncomfortable. I hate that every time I take a teeny step forward, my feet are taken from beneath me I stumble several steps backward. I hate that she’s not here. 

It amazes me on a daily basis how many people advise me to turn to God to help heal my suffering. It amazes me how many people tell me that God had a reason for Everlee dying; that this was somehow part of His plan.  I always wonder if those people would have such a simple answer if their child died. If they would find comfort in knowing some man in the sky had planned to rip their child away from them? Maybe some people would. But I certainly don’t. What’s the reason? What was his reason?  I’m glad that it can bring others comfort, but not me. With everything else that I have lost, my faith and trust are among them. 

Why Today?

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Why today? Why is today so hard? There is nothing special about today… My heart is broken all over again. I am sobbing. I want my baby back. She was my baby, she was my child, she was my daughter. I want to see her grow I want to see her run. I want to see her live.

Why today? Why has this come crashing down on me now?

This weekend, on the advice of my psychologist, I went out of town to try and get back to some of the things that used to bring me joy. The political party that I am affiliated with was hosting a youth retreat (normally something I probably would have been helping to organize) about 2 hours outside of the city. I was extraordinarily anxious about going there and had made a number of arrangements to ensure that I would be able to escape if I needed to, including making Darcy go with me. But I knew that I would be surrounded by people who knew me, and my situation, and they would be nothing short of supportive in my first venture back into the real world. And they were. I thank them all so much for that. 

It was harder than I expected. In a room where I would normally be in control and vocal,  I found myself reserved and confused. And when everyone went out later in the night, I went back to the hotel. My thoughts wouldn’t organize. I couldn’t focus. My words were coming out jumbled. I was just completely off of my game. But I was there. And that was a huge step for me. 

But what used to make me happy, what used to bring me alive and ignite passion in me and make me genuinely happy just gave me a little fizzle. 

Happy. What a foreign concept. 

I look at pictures of myself 6 months ago and it’s like looking at myself in an alternate universe. I wonder if I will ever be able to feel that way again? I wonder if I’ll ever be able to pull myself out of bed in the morning without bargaining with myself. I wonder if I’ll ever close my eyes at night and just sleep ever again. 

You see, with a dead baby and subsequent infertility, I find it hard to get up in the morning (and go to sleep at night) without feeling like a universal reject. By which I mean, kicked to the curb by the actual Universe. Application denied. Not genetically qualified. Unacceptable to procreate. Unfit to parent. Move along.

 

I’m told I judge myself much more harshly than anyone else, and that may be true, but what if it’s the universe that’s judging me?

Why today? Why everyday? Because I miss her. And nothing will ever change that. 

Saving Me – In More Ways Than One

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For the most part, most of my days I feel like my life is completely out of my control. I feel as if I’m constantly tumbling, arms and legs everywhere and no sense of up or down. At my lowest, I run out of hope that things will ever get better. I wonder what is the point of making myself go through the motions. Most of the things I do are because I am supposed to do them not because I want to. I am not at my lowest all the time but once every 1 or 2 days, something happens that just destroys me. I end up sobbing on the floor and after a few minutes my thoughts turn to how I am so sick of the way things are and how nothing and no one can make things better. At my highest points I’m able to find something to genuinely smile about, without having to remind myself to physically lift the corners of my mouth.

Today was one of those days.

Constantly when we go back to that day there is only one memory that brings us comfort. February 12th and 13th were without a doubt the worst days of my life (followed closely by May 3). But through that absolute unimaginable nightmare we had one saving grace, one beacon of light, our nurse, K. (I won’t use her full name). That wonderful angel of a woman saved me that day in more ways than one. She never left my side. She held my hand. She coached me. But most importantly, she showed so much love and compassion and respect to my family and my baby girl. She was the one who took her and bathed her, and dressed her so we could have those ONLY few precious moments where I would ever get to hold her. She cried with us, and her heart broke for our little girl too. She visited me in my hospital room the day after to check on me. And after they discharged me I never knew how to contact her. I wanted so many times to reach out and tell her how much she meant to me and my family. We talk about her so often and are so thankful that we had her but I had no way to tell her.

Today as I was getting ready to go back to the clinic to face another task in this endless nightmare, my phone pinged to let me know I had a message on facebook. It was K. A friend of mine who is a nurse had mentioned me to her and she felt compelled to reach out and see how we were doing. And I got to say thank you. Not a drug induced loopy thank you in a hospital room through bleary eyes. But a real honest thank you. I told her that there is very little I remember from those 16 hours I spent in the labour and delivery room, but I remember her, and her kindness. And I told her how very thankful I was for her. She insisted that she was just doing her job, but what she did for us was so far beyond what is ever expected of anyone. There’s doing your job, and there’s doing what she did. So I thanked her, and I cried my heart out as I typed, but I also smiled. And again I find myself thanking her, this time for reaching out and providing me the opportunity to thank her, even though there is no way I could repay her. I am forever indebted to her in gratitude.

A lot happened at the clinic today, I met with the manager of the clinic to talk about how I was treated two weeks ago. A lot that I want to write about. But today I want to pay my thanks to K. I will never forget how she made me feel in my darkest hour. When I most wanted to let go, she made me hold on. And I will never forget that. I just wish I could repay her.

Better

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People keep telling me not to think about it. They keep making references to “when you get better” and ask me if I’m starting to feel more like myself yet. None of those things are ever going to happen. I have a gaping hole in my being that will never ever be filled. I think that everyone will start to understand me a little better when they start to grasp that concept. I know it’s hard, but I need you to imagine – how would ever “start to feel better” if you knew that you were responsible for your child dying? My body failed my perfect little  five pound, one ounce, eighteen inch long baby girl. And as much as it wasn’t my fault, I am the only one responsible.  

I spent the entire evening looking at pictures of the only time I’ll ever get to hold my first born child, making a memory book instead of writing firsts in a baby book. There’s no room for better here. So please stop referencing this mythical place called better. I need to find solid ground in coping. 

Holding on

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I don’t remember much from those first few days after we lost Everlee. There are very few moments that stick out – The doctor in the case room touching my knee and looking me straight in the eye saying “it means your baby died” is one of them. Everything else just sort of blurs together as if I’m replaying the whole thing through my own tear blurred eyes.

But in the last few days I’ve had a memory come back that haunts me. At her funeral, during the wake, I remember so vividly right now hugging people as if they were the only thing keeping me standing. Like if I held on tight enough that somehow everything would be ok, like I could find all of the answers inside of someone’s arms. Dear friends, family members, co workers, strangers..l hugged them all as if they were the only thing keeping me grounded.

And in retrospect it’s not so far from the truth. I can’t tell you how many times over the past three and a half months that I have thought how much better off I would be if I was with Everlee. Not that I actually entertained making that happen, don’t get me wrong. But if God – if there is a God – had to take my baby girl from me, why put me through all of this pain, why not take me too? Or better yet, why not let me take her place? And without the arms of all of those people who hugged me that day, sent me their hugs from afar, or have even bothered to reach out and let me know they were thinking of us – I honestly have no idea where I would be. Those warm hugs, then and now, mean more to me than anyone will ever know. Even though I may not always respond to emails, or texts, or phone calls (because sometimes I still choke on my words and they end up as hot stinging tears on my cheeks instead) those gestures mean the world to me. I wish I never had to learn this lesson, but sometimes in the greatest of adversities you get to know who your greatest allies are, and you all are mine.

My blog reached 30,000 visitors this week. That’s 30,000 people who now know that Everlee was here, and she was loved more than anything on this earth can measure. And that means more to me than almost anything.

I often have this reoccurring dream, I’ve had it my whole life. I dream that I can fly, but I really have no control over it and I find myself floating away, fighting to keep myself on the ground. I try holding on to things to help me find my way and navigate a world that isn’t made for flying people but its difficult. Sometimes I just can’t grab what I want. Last night I had this dream and I was trying to hold on to Everlee but I just couldn’t grasp her.. She kept slipping away. But other people I know – maybe even you – were there to hold me down and keep me from floating away. It hurt that I couldn’t get to hold my baby girl, but I was so thankful that I had all of you there to hold me and keep me where I needed to be.

Thank you all. I love you.

Further

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I’ve spent the majority of the week between on the verge of tears and on the verge of having some sort of violent emotional explosion. I’ve really been feeling the strain of being alone for so many hours of the day with nothing to distract me but my thoughts and the incessant drone of Netflix (currently consuming Gossip Girl at an alarming rate – mind Doritos at its finest)

I’m torn between thoughts of my beloved baby girl, and a growing hatred for my doctor and a loathing of my inability to convince her to allow us to proceed with fertility treatments because of my weight – well my BMI.

And the more I dwell on that the more angry I get. Yes, I’m carrying extra weight. I always have and I always will. But I had a baby three months ago – of course I have weight to lose right now. But aside from that, if BMI is supposed to be an indicator of other health issues. But my (non pregnant) blood pressure is perfect. My cholesterol is perfect. I have no signs of diabetes. Doctors ask me if I run marathons with my heart rate. I’m healthy, isn’t that the important thing?! I honestly feel so frigging helpless in every single aspect of my life. I’ve lost 6lbs in the last 7 days, and I still feel just as stuck.

I’ve been trying to get out of the house a little more, I’m told its good for me. But every time I do I just end up feeling more horrible. I want to curl into a ball in my bed and cry more and more. I miss my little girl so much it hurts. The more time that passes the further I feel from her and I don’t know what to do to keep her close.

The world may never notice
If a Snowdrop doesn’t bloom,
Or even pause to wonder
If the petals fall too soon.
But every life that ever forms,
Or ever comes to be,
Touches the world in some small way
For all eternity.
The little one we long for
Was swiftly here and gone.
But the love that was then planted
Is a light that still shines on.
And though our arms are empty,
Our hearts know what to do.
Every beating of our hearts
Says of our love for you.
~ Author Unknown